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Allied Health Professionals ' Views on Palliative Care for People with Advanced Parkinson's Disease

Waldron, Mary, Kernohan, W George, Hasson, Felicity, Foster, Susan, Cochrane, Barbara and Payne, Cathy (2011) Allied Health Professionals ' Views on Palliative Care for People with Advanced Parkinson's Disease. International Journal of Therapy and Rehabilitation Copyright IJTR, 18 (1). pp. 48-58. [Journal article]

PDF (Allied Health Professionals' Views on Palliative Care for People with Advances Parkinson's Disease) - Published Version

URL: https://www.ijtr.com


Aims: Allied health professionals (AHPs) have a key role in the delivery of palliative care through rehabilitation. However, evidence suggests that rehabilitation remains an area of neglect in palliative care. This study explores the views of allied health professionals in delivering rehabilitation in palliative care to people with Parkinson’s disease. Methods: Twelve allied health professionals, from both generalist and specialist settings, who had experience of working with people with advanced Parkinson’s disease and/or palliative care took part in interviews and/or focus groups.Findings: Participants viewed palliative care as holistic care; however the rehabilitation care, they provided was impeded by a number of personal, organisational and negative perceptions. Misconceptions as to the value of rehabilitation in the palliative stage and a lack of training resulted in uncertainty as to when and how it could be introduced. While the importance of early referral to AHP rehabilitation services was highlighted, organisational and administrative barriers prevented many people from accessing such care. Conclusion: Many health professionals have a role in palliative care; however, barriers prevent early referral and ongoing access to such services. There is a need to educate professionals in the principles of palliative rehabilitation, combined with targeted resources to promote shared care and responsibility.

Item Type:Journal article
Keywords:allied health professionals, barriers, palliative care, Parkinson's disease, Qualitative Interviews
Faculties and Schools:Faculty of Life and Health Sciences
Faculty of Life and Health Sciences > School of Nursing
Research Institutes and Groups:Institute of Nursing and Health Research
Institute of Nursing and Health Research > Managing Chronic Illness Research Centre
Institute of Nursing and Health Research > Person-centred Practice Research Centre
ID Code:17068
Deposited By: Mrs Mary Waldron
Deposited On:17 Feb 2011 15:23
Last Modified:07 Aug 2017 14:36

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