Ulster University Logo

End-of-Life care and people with intellectual disabilities: A multi-media educational resource

Barr, Owen, McIlfatrick, Sonja and McConkey, Roy (2012) End-of-Life care and people with intellectual disabilities: A multi-media educational resource. Journal of Intellectual Disability Research, 56 (7&8). p. 766. [Journal article]

Full text not available from this repository.

Abstract

Aim This study aimed to develop and evaluate a multi-media educational resource in palliative and end-of-life care for specialist palliative care and intellectual disability services which promoted collaborative working. Methods: A mixed methods design involving three phases was used. Qualitative data were obtained from semi-structured interviews with a purposive sample of professionals (n=30) and family carers (n=5) and from two focus groups with people with intellectual disabilities (n=17). Data were content analysed as outlined y Newell and Burnard (2006). This identified training needs and issues, in end-of-life care for this population which were confirmed through quantitative data from services in a regional scoping study analysed using descriptive statistics. A DVD and manual were developed and evaluated with twelve professionals. Data were collected using a solicited diary, the Readiness for Inter-professional Learning Scale, Likert Scales and an evaluation questionnaire. Thematic analysis and descriptive statistics appropriate to data were used.Results: Findings suggest that this resource demonstrates the need for and benefits of partnership working and transferability of this learning to practice could address issues at end-of-life for people with intellectual disabilities. Conclusions: Findings of this study have importance for partnership working and service provision in end-of-life care for this population.

Item Type:Journal article
Faculties and Schools:Faculty of Life and Health Sciences > School of Nursing
Faculty of Life and Health Sciences
Research Institutes and Groups:Institute of Nursing and Health Research
Institute of Nursing and Health Research > Managing Chronic Illness Research Centre
Institute of Nursing and Health Research > Centre for Intellectual and Developmental Disabilities
ID Code:26708
Deposited By: Professor Sonja McIlfatrick
Deposited On:17 Sep 2013 15:04
Last Modified:17 Sep 2013 15:04

Repository Staff Only: item control page