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Developing a best practice model for partnership practice between specialist palliative care and intellectual disability services: A mixed methods study.

McLaughlin, Dorry, Barr, Owen, McIlfatrick, Sonja and McConkey, Roy (2014) Developing a best practice model for partnership practice between specialist palliative care and intellectual disability services: A mixed methods study. Palliative Medicine, 28 . [Journal article]

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DOI: 10.1177/0269216314550373

Abstract

BACKGROUND: The lack of access to good quality palliative care for people with intellectual disabilities is highlighted in the international literature. In response, more partnership practice in end-of-life care is proposed.AIM: This study aimed to develop a best practice model to guide and promote partnership practice between specialist palliative care and intellectual disability services.DESIGN: A mixed methods research design involving two phases was used, underpinned by a conceptual model for partnership practice.SETTING/PARTICIPANTS: Phase 1 involved scoping end-of-life care to people with intellectual disability, based on self-completed questionnaires. In all, 47 of 66 (71.2%) services responded. In Phase 2, semi-structured interviews were undertaken with a purposive sample recruited of 30 health and social care professionals working in intellectual disability and palliative care services, who had provided palliative care to someone with intellectual disability. For both phases, data were collected from primary and secondary care in one region of the United Kingdom.RESULTS: In Phase 1, examples of good practice were apparent. However, partnership practice was infrequent and unmet educational needs were identified. Four themes emerged from the interviews in Phase 2: challenges and issues in end-of-life care, sharing and learning, supporting and empowering and partnership in practice.CONCLUSION: Joint working and learning between intellectual disability and specialist palliative care were seen as key and fundamental. A framework for partnership practice between both services has been developed which could have international applicability and should be explored with other services in end-of-life care.

Item Type:Journal article
Faculties and Schools:Faculty of Life and Health Sciences > School of Nursing
Faculty of Life and Health Sciences
Research Institutes and Groups:Institute of Nursing and Health Research
Institute of Nursing and Health Research > Managing Chronic Illness Research Centre
Institute of Nursing and Health Research > Centre for Intellectual and Developmental Disabilities
ID Code:30491
Deposited By: Professor Sonja McIlfatrick
Deposited On:04 Nov 2014 09:00
Last Modified:04 Nov 2014 09:00

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