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Implementing a Dignity Care Intervention (DCI) for Individuals with LifelimitingIllness in a Community Setting in Ireland

McIlfatrick, Sonja (2015) Implementing a Dignity Care Intervention (DCI) for Individuals with LifelimitingIllness in a Community Setting in Ireland. European Journal of Palliative Care, 1 . p. 220. [Journal article]

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Abstract

Background: Evidence indicates that people at end of life fear loss of dignity more thananything else. What defines dignity for the individual patient and his or her family is unique.A central tenet of palliative care is to help people die with dignity. Whilst there has been anincrease in emphasis on care in the community, there is lack of guidance on palliative carefor community healthcare professionals.Aim: To implement a Dignity Care Intervention for individuals nearing the end of life in acommunity setting in Ireland.Methods: The MRC Framework for Developing and Evaluating Complex Interventions wasused for this multiphase mixed methods study.Phase 1: Contextualising the DCI tool using focus group interviews with user/carerrepresentatives (n=10) and community nurses (n=18). These explored the use andapplicability of the tool for an Irish context.Phase 2: Educational programme for community nurses (n=54);Phase 3: Implementation and evaluation of DCI in practice: 4 pilot sites, across rural andurban areas are implementing the DCI tool in practice.Results: Findings from Phase 1 identified issues such as reluctance to discuss ‘feelings’;having a ‘desire to please others’ alongside issues of communication within the primary carecontext. Feedback from the educational sessions indicated an increase in confidence andcompetence for implementing the tool in practice. Realistic evaluation approach is ongoingincluding focus groups (n=4) and semi-structured interviews with patients and carers (n=20).Conclusion: The complexity of implementing a tool in practice cannot be underestimated.Greater understanding of such issues will contribute to the future development of practiceand subsequent improved care for patients approaching the end of life.14th

Item Type:Journal article
Keywords:dignity; intervention; community
Faculties and Schools:Faculty of Life and Health Sciences > School of Nursing
Faculty of Life and Health Sciences
Research Institutes and Groups:Institute of Nursing and Health Research
Institute of Nursing and Health Research > Managing Chronic Illness Research Centre
ID Code:31682
Deposited By: Professor Sonja McIlfatrick
Deposited On:29 May 2015 10:17
Last Modified:09 Mar 2017 16:00

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