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A pilot feasibility study examining a structured self-management diabetes education program(DESMOND-ID) for adults with intellectual disabilities targeting HbA1c

Taggart, Laurence, Truesdale-Kennedy, M, Carey, M, Martin-Stacey, L, Scott, L, Bunting, Brendan, Coates, Vivien, Karatzias, T, Northway, R and Clarke, M (2017) A pilot feasibility study examining a structured self-management diabetes education program(DESMOND-ID) for adults with intellectual disabilities targeting HbA1c. Diabetic Medicine, 35 (1). pp. 137-146. [Journal article]

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URL: http://onlinelibrary.wiley.com/doi/10.1111/dme.13539/full#footer-article-info

DOI: 10.1111/dme.13539

Abstract

Aim: To report on the outcomes of a pilot feasibility study of a structured self-management diabetes education programme targeting HbA1c. Methods: A two arm, individually randomized, pilot superiority trial for adults with intellectual disability and Type 2 diabetes mellitus (DM). A total of 66 adults with disabilities across the UK met the eligibility criteria. Of these 39 agreed to participate and were randomly assigned to either the DESMOND-ID programme (N=19) or a control group (N= 20). The programme consisted of 7-weekly educational sessions. Primary outcome was HbA1c, secondary outcomes included BMI, diabetes illness perceptions, severity of diabetes, quality of life, and attendance rates. Results: This study found that the DESMOND-ID programme was feasible to deliver. With reasonable adjustments, the participants could be successfully recruited, consented, completed the outcome measures, be randomized to the groups, attend most of the sessions and have minimal loss to follow-up. Based on the results from a fixed-effects model the interaction between occasion (time) and condition, the result for HbA1c was statistically significant (0.05 level); however, the confidence interval was large. Conclusion: This is the first published study to adapt and pilot a national structured self-management diabetes education programme for this population. This study shows it is possible to identify, recruit, consent and randomize adults with intellectual disabilities to an intervention or control group. Internationally, the results of this pilot are promising: demonstrating that a multi-session education programme is acceptable, feasible to deliver, and that its effectiveness should be tested in an adequately powered trial.

Item Type:Journal article
Keywords:intellectual disability, diabetes, education , DESMOND
Faculties and Schools:Faculty of Life and Health Sciences > School of Nursing
Faculty of Life and Health Sciences
Faculty of Life and Health Sciences > School of Psychology
Research Institutes and Groups:Institute of Nursing and Health Research
Institute of Nursing and Health Research > Managing Chronic Illness Research Centre
Psychology Research Institute > Population Health Sciences and Mental Health Services
Psychology Research Institute
Institute of Nursing and Health Research > Centre for Intellectual and Developmental Disabilities
ID Code:39001
Deposited By: Dr Laurence Taggart
Deposited On:15 Nov 2017 11:00
Last Modified:30 Oct 2018 23:23

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