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Research priorities about stoma-related quality of life from the perspective of people with a stoma: A pilot survey

Hubbard, Gill, Taylor, Claire, Beeken, Becca, Campbell, Anna, Gracey, Jackie, Grimmett, Chloe, Fisher, Abi, Ozakinci, Gozde, Slater, Sarah and Gorely, Trish (2017) Research priorities about stoma-related quality of life from the perspective of people with a stoma: A pilot survey. Health Expectations, 20 (6). pp. 1421-1427. [Journal article]

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URL: http://dx.doi.org/10.1111/hex.12585

DOI: 10.1111/hex.12585

Abstract

AbstractBackground: There is a recognized need to include patients in setting research priori-ties. Research priorities identified by people with a stoma are rarely elicited.Objectives: To improve the quality of life of people with a stoma through use of evidence- based practice based on research priorities set by patients.Design and Methods: Online pilot survey publicized in 2016 via United Kingdom stoma char-ities. People ranked nine stoma- related quality of life topics in order of research priority.Participants: People 16 years of age and over who currently have or have had a stoma for treatment for any medical condition.Analysis: Distributions of the priority scores for each of the nine research topics were examined. Group differences were explored using either the Mann–Whitney U- test or the Kruskal–Wallis test depending on the number of groups.Results: In total, 225 people completed the survey. The most important research priority was pouch leak problems and stoma bag/appliance problems followed by hernia risk. There were statistically significant differences in ranking research priorities between males and females, age, underlying disease that led to a stoma, stoma type and length of time with a stoma.Conclusion: People with a stoma are willing to engage in and set research priorities. The results should contribute towards future research about setting the research agenda for the study of stoma- related concerns that impact quality of life.

Item Type:Journal article
Keywords:colostomy, ostomy, public/patient involvement, research priorities, stoma, urostomy
Faculties and Schools:Faculty of Life and Health Sciences
Faculty of Life and Health Sciences > School of Health Sciences
Research Institutes and Groups:Institute of Nursing and Health Research > Centre for Health and Rehabilitation Technologies
Institute of Nursing and Health Research
ID Code:39098
Deposited By: Dr Jackie Gracey
Deposited On:05 Dec 2017 15:32
Last Modified:05 Dec 2017 15:33

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