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‘Exercise to me is a scary word’: Perceptions of fatigue, sleep dysfunction and exercise in people with fibromyalgia syndrome: a focus group study

Russell, Deborrah, Álvarez Gallardo, Inmaculada C, Wilson, Iseult M., Hughes, Ciara M, Davison, Gareth W, Sañudo, Borja and McVeigh, Joseph G (2018) ‘Exercise to me is a scary word’: Perceptions of fatigue, sleep dysfunction and exercise in people with fibromyalgia syndrome: a focus group study. Rheumatology International, tbc . [Journal article]

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DOI: doi: 10.1007/s00296-018-3932-5

Abstract

Background. Fibromyalgia syndrome (FMS) is a common and complex chronic pain condition. Exercise is recommended in the management of the FMS, however, people with FMS often find exercise exacerbates their condition and causes overwhelming fatigue. Objective. To explore the perceptions of fatigue and sleep dysfunction, and exercise in people with FMS. Methods. Three, 60-90 minute focus groups were conducted with people with FMS (n = 14). Participants were recruited from patient support groups who had experienced therapeutic exercise in the management of their condition. Focus groups were video and audio recorded and transcriptions analyzed for thematic content by three independent evaluators. Results. Fatigue, sleep dysfunction and pain were universally reported by participants. The over-arching theme to emerge was a lack of understanding of the condition by others. A huge sense of loss was a major sub-theme and participants felt they had fundamentally changed since the onset of FMS. Participants reported that they were unable to carry out their normal activities, including physical activity and exercise. The invisibility of FMS was associated with the lack of understanding by others, the sense of loss and the impact of FMS.Conclusion. People with FMS perceive that there is a lack of understanding of the condition among health care professionals and the wider society. Those with FMS expressed a profound sense of loss of their former ‘self’, part of this loss was the ability to engage in normal physical activity and exercise.

Item Type:Journal article
Keywords:Fibromyalgia syndrome; fatigue; exercise; sleep dysfunction; physiotherapy; focus group
Faculties and Schools:Faculty of Life and Health Sciences > School of Sport
Faculty of Life and Health Sciences
Faculty of Life and Health Sciences > School of Health Sciences
Research Institutes and Groups:Institute of Nursing and Health Research > Centre for Health and Rehabilitation Technologies
Institute of Nursing and Health Research
Sport and Exercise Sciences Research Institute
Sport and Exercise Sciences Research Institute > Centre for Physical Activity and Health
ID Code:39329
Deposited By: Dr Iseult Wilson
Deposited On:17 Jan 2018 10:34
Last Modified:17 Jan 2018 10:34

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