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Active carers: living with chronic obstructive pulmonary disease in the family (102kb)

Spence, Alison, Hasson, Felicity, Waldron, Mary, Kernohan, George, McLaughlin, Dorry, Cochrane, Barbara and Watson, Barbara (2008) Active carers: living with chronic obstructive pulmonary disease in the family (102kb). International Journal of Palliative Nursing, 14 (8). pp. 368-372. [Journal article]

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URL: http://www.internurse.com/cgi-bin/go.pl/library/article.cgi?uid=30771;article=IJPN_14_8%20_368_372


It has long been recognised that the majority of care provided in chronic illness comes not from health and social care professionals, but from family and friends. One such illness is chronic obstructive pulmonary disease (COPD), a leading cause of morbidity and mortality in the developed world. To explore the specific care needs of informal caregivers of patients with advanced COPD, interviews were conducted with seven active family caregivers. Interviews were taped, transcribed and content analysed to obtain the caregivers’ needs. Results confirm that family caregivers provide direct care with little support and assistance. Participants reported restricted activities of daily living and some emotional distress. There were knowledge deficiencies among caregivers relating to the COPD illness trajectory and little awareness of the potential of palliative care. Family caregivers need social and professional support while caring for a patient at home. This would help to ensure that their physical and emotional health does not suffer. There is a need to devise interventions to ensure family caregivers are supported.

Item Type:Journal article
Faculties and Schools:Faculty of Life and Health Sciences
Faculty of Life and Health Sciences > School of Nursing
Research Institutes and Groups:Institute of Nursing and Health Research
Institute of Nursing and Health Research > Managing Chronic Illness Research Centre
Institute of Nursing and Health Research > Person-centred Practice Research Centre
ID Code:4118
Deposited By: Professor George Kernohan
Deposited On:27 Jan 2010 15:00
Last Modified:07 Aug 2017 15:07

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